Thursday, November 10, 2011

I'd do Anything for you dear, anything!

We are thankful, that all went well yesterday with Calli's MRI.  So, it took almost two hours to get to CHOP.  Traffic was a mess, but we got there safely.  Due to anesthesia she had to fast overnight & Calli was so hungry by the time we got there, that she could not wait to go to sleep! 

Despite all the traffic, we arrived on time for registration and check-in!!!  However, an hour went by before they finally informed us that there would be some delays- 20 minutes...turned into an hour, turned into two, and finally 4 hours after we arrived, they were ready for her.  We smiled and giggled as she smiled and giggled herself to sleep.  We kissed her goodbye, and sat for 4 more hours in the waiting room.  I had a hard time not being with her, I have been with her in the room sitting right next to her for each and every MRI- But for this 8th one, no moms allowed in when they put her to sleep :(   

The anesthesiologist finally came in and told us she was almost done, and that it was end of his shift and he was leaving!  Normally she would be recovered in the MRI pre-procedure rooms, but due to short staff they informed us that we had to go to the PACU recovery waiting area upstairs to get her.

As we went up to the 4th floor and entered the waiting room, and saw all of the parents eagerly awaiting news of their child's surgery.....bittersweet memories of her surgery day came flooding back to me.  The emotions I felt that day regurgitated and reminded me of how far we had come in such a short time.   

As we sat down, Mike recognized a mother and her son that used to go to church with us.  She looked worried, so I went over and said hello.  She was telling me of her grandson who was in surgery and had "Hirshpr..."  She could not sound it out, but I knew what she was talking about and finished her word for her- "Hirschsprung's disease!"  Her eyes got so big and she asked me how I knew what it was!  

Well it just so happens that one of my friends has two children with this very rare disease.    She asked me if I could go and talk to the young mother of the baby, and as I did there was a reassurance on her face as well as other relatives.  I gave her my friend's number and told her that her children were were doing great, and living normal lives.  It all makes it a little less scary when you hear success stories of other children.

Then one of the family members asked, "Wait a second, why are you up here?"  I told them the story of how long we had to wait, and how Calli was supposed to be recovering downstairs, but they decided last minute to send her up here.  With that, they smiled tearfully and told me that they were sure that we were sent to comfort and reassure them that all would be OK.  

You see, God works in ways we do not even understand.  There is no way we were supposed to be up in that waiting area, and this disease is so very rare, the fact that I have a friend that has not one, but two children with it- really rare....and that Mike, not even me, but Mike recognized her. 

It is reassuring, and comforting knowing when you are in the center of God's will.  One of the family members came up to me and said, "It is just too weird, I mean, what I am trying to say is that, we were praying, and God sent you to encourage were not even supposed to be here."

Not too long after, a nurse came and escorted us to an awake Calli.  I had hoped we would be there to see her wake up, which we would have if she was recovered downstairs.  I had promised her I would be right there...but I guess God had other plans.  Mike and I tried to comfort her as best as we could as the drugs wore off, and I must say that she recovered much better and more quickly this time.  Mike makes all the difference.  I mean, I am her Mommy, and she needs me each and every day... but he is her Daddy, there is nothing like the loving, strong and protective arms, of your Daddy.  He keeps me in check pretty well too :)  He is strong and steady and peace and calm. He can be pretty funny sometimes too!  Like last week when Calli rang with her bell choir at Byers Choice.  
Ding Ding Ding ing Dong That is our song....

After the concert, we walked around and there was a room where you could try on hats and clothes and wow, was I surprised, delighted and warmed when I turned the corner and saw this!!!

Wow, Honey....I know if I asked you, you would never...but for Calli?
Yes, for Calli- I'd do anything!!!

 This song from the British Musical, OLIVER, really just hits the nail on the head.  The words are great- have a listen and smile for a bit.

Trying to look like Scrooge- but isn't he so cute???
Calli and Aidan had some fun dressing up too!  

Kinda scary! 

A fine Lady :)
Ha Ha lol- She is a fighter!
Aidan was hiding from me......
That's a good boy Aidan- now lets get a family pic!
so funny-lol-

I still cannot believe that they did this :)
It was a lot of fun, just simple fun <3

Her hair..can you see it?  It is coming in very blond!

My Aidan, is becoming a young man <3


  1. When I saw the title of this post, I immedeiatly started singing this song in my head :) So, guess we were on the same track! lol.
    I LOVE the pics. The 2nd one of the family in front of the St. ?? sign might actually make a very cute Christmas card :) Just my opinion. You are all so adorable.
    Glad things went well. Good news warms the heart. Love ya.

  2. Oh my gosh, I wish I had known that you were performing there! Don't you just LOVE the dress up stuff?! I take a field trip there every year before Christmas, and last year, we had our fair-share of dressing up too. (:
    Looking good, Derstines!

    Love and prayers,
    Lydia <3

  3. Oh I wish I knew you guys were at Byer's Choice too! I would love to bring the kids to hear Callie ring sometime. They love the handbells at Leidy's and it would be good to see you guys again.

  4. Mrs. Christy, We have two more concerts this winter maybe my mom could e-mail you the info. I miss your kids, they are such a joy to be around! Tell them I said, "Hi!"

  5. Calli is so beautiful, even in the silliest outfits she's stunning!

  6. I love this Lucy! I take Kaish and his friends there every summer. They think dressing up is HILARIOUS : ) Mike looks very great in costume : ) YAY for blonde hair!


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