Thursday, June 7, 2012

Night Songs

June 12 is Calli's 15th birthday.  
Could you please send her a postcard or a card- and in it, could you please include your favorite scripture, or a scripture that speaks to you.

 Quakertown Starbucks is doing an Alex's lemonade stand on June 8th, this Friday.  They will be holding a carnival with games and raffles to raise money for ALSF as well as having a table set up to honor Calli- their local hero.  They'll have cards for people to write notes to Call. Make sure to go out and support Alex's in June.

Also, Alex's Lemonade Stand's Great Chef's Event will be on Calli's birthday.  She was supposed to go as an honorary guest, but I don't think we will be venturing out.  Even though she can't go,  they are naming their Fund-A-Cure Project in honor of Calli at the event next Tuesday.  Fund-A-Cure is a live auction that encourages attendees to make a donation to childhood cancer research.  

We think that is awesome, and very honoring of our Calli and her struggle and fight.  Please go out, and support one of these or both of these events, in honor of Calli.
 One day last week...I made horrible sundaes for Mike and Calli :)


 I am pretty sure that they enjoyed them.

Memorial Day Weekend, Aidan marched in a parade with his TaeKwonDo Pals...











these guys are so cool


Aidan and I rode rides, while Dad and Sissy watched






Aidan won a goldfish- lol

Aidan's super awesome friend Josh :)
 So after  the parade on Saturday...things went down hill.

Aidan reading to Sissy
We had quite a rough last two weeks
Sissy reading to Aidan

We finally were able to finish Calli's room, get her settled in, and enjoy some good old fashioned quality time :)
I was very tired :) Calli beat me!
I made a collage for her wall
Happy dogs
During one of Calli's seizures, a really really bad one, she was moaning and screaming and her eyeballs were popping out of her head, and then suddenly..... she began to speak in another language.  
IT was not mumbles
 it was clear and definitely Asian of some sort.  
Mike and I just looked at one another and continued ourselves to pray in the Spirit.  
God is so good.  
As she spoke in this other tongue, during a grand Mal seizure no less, she uttered in English, "I love You...." and then more foreign words came, and then "Aidan.." 
So we got Aidan, and he prayed too, we were all praying together, then the most beautiful sound came forth from within her...
she began to sing in the most beautiful language, another language- so clearly, so pure."

God comforted her as no one can.

Last week was a blur...lots of seizures, lots of emotions, lots of prayer, and singing, and it was during a seizure that came later another day...that yet more came forth from within Calli's being...more wisdom, more power, more prophetic utterances.

Aidan and I were alone with her, and again, she began to speak in this tongue, and Aidan heard Korean words- he heard "Bow on your knees, and Thank You."  

Another time, she sang again in the most beautiful voice. I have it on video, it is the most beautiful thing I have ever heard.

Then another time, she spoke prophetic utterances, so deep, so profound- all during grand Mal seizures- she was totally out of it.  I recorded two times- it is awesome.  

Some of the things spoken from her during the seizures, were : 
"take the scales off of your eyes, family, family, take the scales off, both hands, when will you see? take them off, ...."
and..."faith, by His stripes, faith,...you will walk, you will walk.....physical rejuvenation, mental rejuvenation...."  
There is more.
The very power of God took over a bad situation, a hopeless moment, a moment where all we could do was pray and worship, believe, and then God blessed Calli and us with his wisdom, promises, and words....and comfort us as only He can.

After two very hard days full of non-stop seizures, I began to speak those things that came forth from her mouth over he body.  Each time she seizes, I speak God's words, God's promises over her life- no matter what I am seeing.  Faith is not seeing...Faith is believing it especially when you don't see it.  
She said that during one of the seizures, she saw scales on many peoples eyes and that we had to take them off of them...but that other people were actually trying to take them off of her eyes,and they were actually hurting her, burning her eyes- she said it was demonic, and hurt her eyes.

Sunday, she was so tired, and we were too, and some friends came to visit, and then it poured rain and a double rainbow came here ...twice it came- 

God always keeps His promises...the next day, Calli was normal, seizure free, but then again yesterday, more seizures, and through the night last night.  Again, we cannot go by what we are seeing or not seeing.  Faith does not waiver, he who doubts is tossed about like a wave on the ocean.

Mike and I are up most of the night and all day with her.  I think I got two showers in 7 days :)  I love sitting by Calli, I love being there with her and for her 24/7 she is my gift, my child and it is my job that I love.  
Aidan has been such a good brother, sitting with her, and reading to her, and it is very hard to watch his sister suffer through this trial.
 Watch what you say, watch what you think...for every idle word you will held accountable.  Someone spoke something so sad, so very inappropriate to Aidan, that put fear in his heart, and doubt and each time Calli seized he thought she was dying, because someone said that seizures meant you were going to die soon...I did not react exactly as I should have to this person...but God...but God...just wants me to focus on Him...no matter what I do..or anyone else...or what we are seeing....it is all just distractions....things may look bad, but the thing is...
We walk by FAITH not by SIGHT.  Faith insists.God wants us to worship Him through it...no matter what we see, we must keep our eyes on Jesus...just let it all go... and be and believe 

Challenge yourself, challenge your faith...worship through you doubts, your pain, through your heart breaking, through it all.....

A good friend was praying for Calli, and he fell asleep praying, which I love, I think God loves it too, when we fall asleep on His lap just worshiping Him and praying for our beloved family...he feel asleep and had a dream, in the dream Calli was healthy as an ox. She was walking around, laughing, dancing, etc... She definitely did not look like the pictures above. He then heard the words "Calli is fine" and then he heard, 
"Faith is not believing God can do it, 
Faith is knowing God will do it."

YES THAT IS IT!
It is not...I believe but I am being realistic here...NO that is not faith, that is doubt.

 So, after all that,she smiles :)

Aidan had a wonderful opportunity to play in the worship at Franconia Mennonite Church on Sunday...I did not get to see him, so if anyone got a video, please send it to me :)

Also...God is just so very good, and always always provides.  do not ever doubt that God will provide exactly what you need, and at the moment you need it.   Mike had to take off the last several weeks, and will most likely take the next of as well...we need him home to help us.  He has no vacation or personal time left...but i knew God would provide.  
Literally the day after I said that to Mike, two of his classmates from CD's Class of 95' showed up at our door with a gift from the Class of 95'.  It is enough provision to get us through the weeks he must take off.  See?  How can you doubt God?  He is good-  
Thanks so much Class of 95' for letting God use you, to just confirm, perfect and strengthen us, and our faith.  There are so many more too, that have given, and it has blessed us, and provided meals each week, gas cards, grocery cards, money for equipment, meds etc.... thank you so much and we are so thankful.

Tonight, Calli wanted ice cream :) She said she wanted to try a new flavor...so Mike went and got several :)

Uncle Tom and Terri came over tonight, and Aidan got to go up in his Cherry picker :)  He took some really awesome pics for us.










On other interesting news- Mike and I found this huge slug the other night!


Isn't he cute?  I would not let Mike put salt on him...even though he said it would be a science experiment ;P
And I know we are late on the uptake..but apparently there was a bear in our yard!  A neighbor snapped a pic of him at the post office, which is literally 50-80 ft from our house.  
sorry such a bad copy, but that is a big black bear (at least to me!)
Then we were told, that the bear came to our yard, climbed and stood up at our fence and apparently our dogs were going nutso barking (what Else is new?) and the neighbor tried to scare the bear away from our dogs.  No wonder they have been so eager to go outside- except for Roscoe, who is even more terrified :)
Mike found its berry-laden poop today.
he said it got the runs from the mulberries :)
 So, wow, what a time we are having!  Heavenly visits, night songs, double rainbows, huge slugs, cherry picking visits,  and bears... oh my!

God is so good and His love endures forever.  


Sunday, June 3, 2012

chained to your bedside-

To clarify-  I did not write this "poem,"
this is the lyrics to the song posted below...which is appropriate but not our story- can just relate really to it. 
now is the time to have faith- 
we walk not by sight, but by faith.
If you lose Hope now, if you lose faith now, if you start resolving now..your faith is false.
Jesus said, when I return will I find FAITH?
Ask God to change your hearts, to change your doubt and unbelief into living faith!

 Lou's Song 
by Micah Lother
Stay for a while
I've got nothing else to lose but you
I know you're in pain
But I'm begging you to hold on tight
Tell me I'll be alright

No matter where you go
I will keep you safe
Don't ever be afraid
The stars are shining bright
Through cold and endless nights
I will always always be with you

Chained to your bedside
but I never wanna be set free
Somehow I see more life in you
yet I'm the one without a disease
Oh please show me that I'll be alright

No matter where you go
I will keep you safe
Don't ever be afraid
The stars are shining bright
Through cold and endless nights
I will always always be with you

Always be
Will always be
Be with you
Always always be with you

No matter where you go
I will keep you safe
Don't ever be afraid
The stars are shining bright
Through cold and endless nights
I will always always be with you



psalms 40
I waited patiently for the Lord to help me,
    and he turned to me and heard my cry.
He lifted me out of the pit of despair,
    out of the mud and the mire.
He set my feet on solid ground
    and steadied me as I walked along.
He has given me a new song to sing,
    a hymn of praise to our God.
Many will see what he has done and be amazed.
    They will put their trust in the Lord.
Oh, the joys of those who trust the Lord,
    who have no confidence in the proud
    or in those who worship idols.
O Lord my God, you have performed many wonders for us.
    Your plans for us are too numerous to list.
    You have no equal.
If I tried to recite all your wonderful deeds,
    I would never come to the end of them.
You take no delight in sacrifices or offerings.
    Now that you have made me listen, I finally understand[a]
    you don’t require burnt offerings or sin offerings.
Then I said, “Look, I have come.
    As is written about me in the Scriptures:
I take joy in doing your will, my God,
    for your instructions are written on my heart.”
I have told all your people about your justice.
    I have not been afraid to speak out,
    as you, O Lord, well know.
10 I have not kept the good news of your justice hidden in my heart;
    I have talked about your faithfulness and saving power.
I have told everyone in the great assembly
    of your unfailing love and faithfulness.
11 Lord, don’t hold back your tender mercies from me.
    Let your unfailing love and faithfulness always protect me.
12 For troubles surround me—
    too many to count!
My sins pile up so high
    I can’t see my way out.
They outnumber the hairs on my head.
    I have lost all courage.
13 Please, Lord, rescue me!
    Come quickly, Lord, and help me.
14 May those who try to destroy me
    be humiliated and put to shame.
May those who take delight in my trouble
    be turned back in disgrace.
15 Let them be horrified by their shame,
    for they said, “Aha! We’ve got him now!”
16 But may all who search for you
    be filled with joy and gladness in you.
May those who love your salvation
    repeatedly shout, “The Lord is great!”
17 As for me, since I am poor and needy,
    let the Lord keep me in his thoughts.
You are my helper and my savior.
    O my God, do not delay.